Walk a Mile in their Genes

By joining PWSA | USA’s Walk a Mile in Their Genes advocacy campaign, participants will not only raise awareness about PWS, but raise much needed funds to enable PWSA | USA and their volunteers to effectively advocate for the unmet needs of our loved ones with PWS.

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Watch our Rare Disease Week on Capitol Hill recap video below! PWSA | USA staff and our volunteer advocates were grateful for the opportunities the Everylife Foundation and Rare Disease Legislative Advocates provided throughout the week. We had many successful meetings with elected officials and their staffers, shared our stories and shined a light on PWS/our community’s needs, and built relationships with fellow rare disease advocates. We can’t wait to return to Capitol Hill in May for our D.C. Fly-In and continue to fight for our loved ones and families.

Advocacy in Action Photo Gallery

Scroll through our photo gallery to see all the ways PWSA | USA and our volunteer advocates are taking action!

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Looking for another way to show your support for PWS Advocacy?

Click HERE to visit our Bonfire site to order your Advocacy gear today! Proceeds will benefit PWSA | USA's Advocacy efforts.